Understanding End-of-Life Care in Australia
Published: 24 June 2019
Published: 24 June 2019
The significance of being able to provide compassionate care that eases the suffering of people in their last days cannot be overstated.
When an illness is deemed incurable, an individual has reached the point of ‘end-of-life’. End-of-life care is the support available to terminally ill patients when they find themselves at the final stage of life.
This care aims to improve the quality of life of someone who has a life-limiting illness, through offering services, information, advice, referral and support (Better Health Channel 2017).
End-of-life care is distinct from palliative care, though they are frequently grouped together.
(Australia’s Health 2016)
Health professionals are uniquely placed to provide treatment of an emotional, physical, spiritual and psychological nature to patients who require end-of-life care.
Not only does end-of-life care support the individual who is nearing death, but it also caters for family and carers who are placed in the often challenging position of looking after someone in their final days.
Australia is known for its robust healthcare system and our end-of-life care is no exception. Australians broadly benefit from safe and affordable healthcare of very high quality: it’s one of the reasons as to why we have one of the longest life expectancies in the world.
(Australian Government Department of Health 2019)
There is still room for improvement however, and people who have experienced the end-of-life care system in Australia have criticised it as being hard to navigate for patients and those responsible for their care, which adds stress in an already very difficult situation.
The factors by which we can evaluate the effectiveness of end-of-life care include:
(Australia’s Health 2016)
The way in which end-of-life care is provided varies from state to state, and of course access to these resources plays a large role in this. Relevant services and resources include:
Largely, these services are geared toward older Australians and this affects the way we think of, and implement, end-of-life care services. This is the case despite knowing that about one-fifth of patients who require end-of-life care are under 65. (Australia’s Health 2016)
The general consensus in the last couple of years suggests that compassion and striving toward a ‘good death’ are crucial.
There are steps we can take to get closer to achieving this, including:
(Swerissen and Duckett 2014; Australia’s Health 2016)
Being informed that you do not have long to live is devastating news for anyone. Even in situations in which someone is aware of an illness progressing, this news can ignite stress and emotional responses from them and the people who love them.
Thoughtfullness and attention to detail are of the utmost importance in the situation of supporting someone at the end of their life.
Considerations such as financial and estate planning, talking to other family members, treatment options, and preparing for the absence of this person must be made by the carer.
When faced with the difficult situation of caring for someone at the end of their life, let carers know that help is available. There are a wide range of resources available to them to help them through this tough process and this can help to quell feelings of fear and uncertainty.
A carer may be concerned specifically about the everyday tasks that seem unmanageable in the event of looking after someone at the end of their life. There are resources available for this, including assistance for:
(Cancer Council 2017)
Accessing help at a government and community level allows a carer to think of themselves as one of the many people invested in the care of someone at the end of their life, and not needing to bear sole responsibility for this person.
Ultimately, care, dignity, and respect are the key factors for providing successful end-of-life care – this care must extend to the friends and family of the person nearing end-of-life.
Death is an unavoidable part of life, but striving towards providing outstanding care for those approaching death (at a rate sooner than the rest of us) is a responsibility we must be brave enough to shoulder.
National Consensus Statement: Essential elements for safe high quality end of life care: ACSQHC's national consensus statement on essneitla elements for safe, high quality end of life care.
Standards for Providing Quality Palliative Care for all Australians: Standards for palliative care in Australia released by Palliative Care Australia.
What do you want for your end of life care? Information specifically for patients anticipating the end-of-life stage.
For those interested in the future direction of end-of-life care watch the video below, in which physician BJ Miller outlines his vision for care as a professional working in the field and as someone who has had direct experience of being cared for:
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